Baritone in charge Zip Hoodie Cute Sweet adeline Women's Hooded Sweatshirt Life's a Pitch Fitted Hoodie BARBERSHOP License Plate Frame Babe Reusable Shopping Bag Sweet Adelines International T-Shirt GALS QUARTET Keepsake Box Unique Sweet adeline Plus Size Long Sleeve Tee Basses Rule Tote Bag PITCH PIPE Ornament (Round) I want to be a Queen Button leads rule.png Water Bottle MUSIC MAN Ornament (Round) Ash Grey Sound Better T-Shirt Babe Bumper Bumper Bumper Sticker Sweet ADELINE Infant Bodysuit Ring that Chord Ash Grey T-Shirt SING TO ME 2.25" Button (10 pack) WILL SING Tile CoasterStreet WebsiteAdeline StreetAdeline RecordsThe WebsiteClosedWebsitesYears AgoA WellBuyForwardThe Adeline Street website closed down a few years ago. Adeline Records is one of the websites where you can buy most of their products as well as CD's and records. – Teen Camp $130 – Junior Camp $130 – Pre-Teen Camp $130

– Family Camp $80 Please have registrations in two weeks prior to camp! Adeline Christian Camp hosts four camps throughout the summer. The camps include one week long teen camp, one week jr. camp, one pastor’s replenish retreat, and one long weekend family camp. Campers may want to bring extra money for an Adeline Christian Camp t-shirt and for inexpensive snacks available at the camp’s canteen. You can register online by clicking the link to your left. Each camper must have a registration completed and turned in two weeks prior to the start of camp. A camper must have a registration form for each camp they wish to attend. The camps are broken into the following categories: TEEN CAMP – June 26th – July 1st o  Grades 9th – 12th A sandwich dinner will be served at 6:00 pm o  Pick up 4:00p.m. JR. CAMP – July 17th – 22nd o  Grades 3rd – 5th o  Check In 4:00p.m – 6:00p.m. Families are invited to stay for a sandwich dinner that will be served when check in is complete

o  Pick up estimated 7:00p.m. Families are invited to join their campers for Friday’s 5:30 evening meal and the closing program to follow. Pre-Teen CAMP – July 24th – 29th o  Grades 6th – 8th Families are invited to stay for a sandwich dinner when check in is complete Family Camp – August 11th – 14th Back-to-School Teen Lock-In – August 19th – 21st o  Bedding: sleeping bag, sheets for long twin, pillow o  Play clothes including a modest swim suit and a hoodie for cool nightsmowgli hoodie ITEMS TO LEAVE AT HOMEhoodie sapi A TYPICAL DAY AT CAMPkelebihan hoodie A typical day starts with morning devotions in the tabernacle with breakfast to follow. howdy doody song

The afternoon is filled with games, free time, and of course canteen. Our evenings consist of dinner, worship, and cabin devotions.SCN8A-Help Adeline Find AnswersA great piece on "citizen scientists" featuring our SCN8A family support group. Beautifully written by Hillary Savoie of The Cute Syndrome with whom I've partnered as the SCN8A Advisor. "/…/hillary-savoie-paren…/Parents connect on the web to fight rare diseasesSCN8A-Help Adeline Find Answers added 5 new photos.It might not have happened until 8:45pm, but we finally got everyone to sit still (sort of!) to take our family SCN8A awareness photo (baby woke up for a 5 minute snack so we took the opportunity!). cmc hoodieTo say today was a success is an understatement... our support group families literally reached THOUSANDS of people all over the world in this one day. okay okay hoodie in pakistan

💜 Thank you all for your support---hold on, because this is still the beginning! # # #scn8astrong #See allSCN8A-Help Adeline Find Answers shared The Cute Syndrome's post.If you'd like to know a bit more about our SCN8A community as well as the huge impact Dr Harris has had on our children, please watch this 4-minute segment that was aired on Indianapolis Fox59 news yesterday. You may share widely! 💜 # # # # # #The Cute SyndromeDr. Mandy Harris, who has been such an important member of our SCN8A community, is currently in her own serious health battle due to severe complications from h...er Type 1 Diabetes. Stls nation hoodieill, even though Mandy doesn't have a voice at this moment, she is still helping our SCN8A community. A photo from our awareness campaign was the last thing she shared last week before becoming critically ill--as a result her family generously felt she would want to help celebrate International SCN8A Awareness Day in whatever way she could. So

Juliann Bradish, our SCN8A Advisor, spoke to the news about Mandy and why she is so important to the Bradish family and our SCN8A family. Ke/2017/02/08/397382/ How to bring awareness to Cute SyndromeSCN8A (Cute Syndrome) is a gene that affects brain cell function and causes severe epilepsy. Juliann Bradish from the Cute Syndrome Foundation spoke with us about the first International SCN8A Awareness Day. Fo.|By Fox 59 WXIN IndianapolisSCN8A-Help Adeline Find AnswersOn March 8, 2013, a little girl was born weighing 9lbs 1oz. She had 10 tiny fingers and 10 tiny toes. Did you know she was healthy and thriving and brought so much joy to her parents and her proud, 19-month old sister who gained a best friend the instant she was born? This precious baby smiled, she did tummy time, loved food, she rolled, she giggled (mostly for her big sister!) and was thriving. Then one day when she was just shy of 5 months old, she was taking a nap, made a... funny noise, and was found blue, limp, unresponsive, and not breathing. He

r Mommy and Daddy didn't know it yet, but this day would change all of their lives forever. This baby had a mutation on her SCN8A gene. For the next 3.5 years, this precious girl would have to re-learn how to laugh, struggle to learn to sit without falling, have to play in an 8'x8' padded area so she wouldn't tumble and hurt herself, fight against her coordination and balance issues, wear braces to support her muscles and ligaments so she could stand, use a walker to teach her to walk, spend hundreds of hours in therapy sessions to allow her to learn her sense of space, to help her learn to move safely, to help her learn to stack objects, orient puzzle pieces, overcome her tremor when holding utensils, crayons, scissors, and pencils, to help her learn her bubble and respect personal space, to touch softly (the last two are still a work in progress 😉), and to help her understand words there are spoken to her. She would still experience seizures which would make each of these tasks SO much more difficult to accomplish. Thi

s little girl is so incredibly fortunate because after all that hard work, she can now walk, talk, run, feed herself, dress herself, use the potty, spin, jump, color, paint, cut and paste, and wreak havoc just as any nearly 4-year old should. Despite all of the frustration, the meltdowns, the seizures, the set-backs, and additional challenges she faced, she kept smiling and she never gave up. You might not know that not every child with SCN8A has been as fortunate... some still struggle with daily seizures, many can't walk, talk, or even eat by mouth, and still others have experienced seizure-freedom, met milestones, and in an instant saw seizures return and had all their accomplishments ripped away. Most frightening is that 7 have lost their lives in the midst of fighting this horrible disease. Today is about ALL children who struggle with SCN8A all over the world. For those in heaven and on Earth. We never gave up on Adeline and we WILL NOT give up on any of them! Thank you for following this journey to make it to our First International SCN8A Awareness Day! <3

# # # # # # SCN8A-Help Adeline Find AnswersTomorrow is the First International SCN8A Day. Would you show Adeline and her friends support and help us spread awareness by... ✔️Wearing your awareness day shirt (or simply wearing purple, the color for epilepsy!) ✔️Posting a photo of yourself or family members linking The Cute Syndrome Foundation and using the hashtags # # # # ✔️Sharing our foundation page on your Facebook page Thanks so much! 💜 SCN8A-Help Adeline Find AnswersToday, the star student wanted a picture with her big sister. She said they are "star sisters" 💜💜SCN8A-Help Adeline Find AnswersDaddy took the day off and we made a surprise visit to this week's "STAR" student at preschool. Adeline had such a wonderful day and has already planned each day's show and tell for the week! 💜SCN8A-Help Adeline Find AnswersDr Harris made Adeline better and now Adeline wants to make her better 💜Posted by SCN8A-Help Adeline Find Answers shared a Page.It's hard to even write this because tonight my post isn't about a child with SCN8A. Tonight,

my post is about the woman who saved Adeline's life and is the pivotal force that drove Adeline (and countless others!) to do so well... she is not only a professional I hold in the absolute highest regard, but over the past 3.5 years has also grown into a trusted ally and friend. Dr Mandy Harris, Adeline's neurologist, is extremely unwell and in dire need of positive energy and pra...yers to help her get through a health crisis. Please help her see this through in the same way she has helped so many. She has never given up on our children and we WON'T give up on her! # 💜 http/pray4mandy/?ref=page_internal Pray4MandySCN8A-Help Adeline Find AnswersI welcome you to help all of us at The Cute Syndrome Foundation celebrate The First International SCN8A Awareness Day which is rapidly approaching! Please spend a couple minutes getting to know what life is like for those with SCN8A mutations. <3 https://youtu.be/-A2FkrV1BLMInternational SCN8A Awareness DayHelp us celebrate the first International SCN8A Awareness Day on February 9th, 2017 by spreading the word about SCN8A Epilepsy! Learn mor

e at: http://www.scn...SCN8A-Help Adeline Find AnswersAdeline is so proud of her big sister role AND her little sister role and she plays them both just they way she should! # 😍💜💜💜😍SCN8A-Help Adeline Find AnswersA fantastic news story to raise awareness featuring a fellow Michigan family from our support group whose child is also suffering from an SCN8A mutation. 💜 # # # # http:///…/|By FOX 17SCN8A-Help Adeline Find AnswersAdeline has some record-breaking news! 💜 # # # # #Posted by SCN8A-Help Adeline Find Answers shared The Cute Syndrome's photo.The first-ever International SCN8A Awareness Day is rapidly approaching (February 9!). Tonight my Adeline got to tell the world a little-known fact about how # affects her. Still she remains #. If you'd like to /scn8aawarenessday # # # #The Cute SyndromeMy name is Adeline. I am 3 and a half and I have SCN8A Epilepsy. You might not know that even though I can speak well, the seizures during my infancy and early... toddlerhood are the reason I have auditory processing disorder and it is challenging for me to always understand what people say to me. # # # # # # SCN8